In the beginning my life was once so normal and plain
Then over night my whole outlook changed
The news of the diagnosis of this damn disease
Deafened into my ears, ringing in the cold breeze.
Life is now too quickly passing me by
As the hours slip into a rapidly shifting lullaby
There is a lot for me to come to terms with
Everything is being taken from me, when I have so much to give.
This can not be happening to me
This will not happen to me! Just let me be!
How will my family learn to cope
As the memories walk a lonely tightrope.
Even though recovery is now out of time
The vivacity of inner tranquillity is still in it’s prime
But there’s this strange sense of fear and anger for the ones I
am leaving behind
If only I cared for this vehicle, I wouldn’t need the MOT for
this guilt in my mind.
As my bones ache and feel raw
Muscles spasm and nerves grow sore
I am the tone that’s born without a pitch
Vision blurs as my face begins to twitch.
It’s like someone has removed the light from my dawn
If luck could be cashed in a bank, then I must be overdrawn
I find it hard to look at these altered appearances that
nauseate
Pushing away friends and love ones to avoid them seeing
the inevitable fate.
Things are more clear than that of the beginning
I was just cutting corners instead of focusing on winning
Things were not normal, I didn’t truly know this vim
Taking too many gambles placing everything on a whim.
But out of these shadows, my life’s craft has been discovered
The gentle touch of death is soothing, as if I were
being mothered
Peacefully I descend, less heavy is my chest, absent is the
cough
And the energy I once was, now flies gracefully away like the
evening moth.
